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- Brief communication Validation of the Korean Version of the Huntington’s Disease Quality of Life Battery for Carers
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Hee Jin Chang1
, Eungseok Oh1
, Won Tae Yoon2
, Chan Young Lee3
, Kyum-Yil Kwon4
, Yun Su Hwang5
, Chaewon Shin6
, Jee-Young Lee7
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DOI: https://doi.org/10.14802/jmd.24217 [Epub ahead of print]
Published online: December 30, 2024
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1Department of Neurology, Chungnam National University Hospital, Chungnam National University College of Medicine, Daejeon, Korea
2Department of Neurology, Kangbuk Samsung Hospital, Sungkyunkwan University School of Medicine, Seoul, Korea
3Department of Neurology, Ewha Womans University Mokdong Hospital, Ewha Womans University College of Medicine, Seoul, Korea
4Department of Neurology, Soonchunhyang University Seoul Hospital, Seoul, Korea
5Department of Neurology, Jeonbuk National University Medical School and Hospital, Jeonju, Korea
6Department of Neurology, Chungnam National University Sejong Hospital, Chungnam National University College of Medicine, Sejong, Korea
7Department of Neurology, SMG-SNU Boramae Medical Center, Seoul National University College of Medicine, Seoul, Korea
2Department of Neurology, Kangbuk Samsung Hospital, Sungkyunkwan University School of Medicine, Seoul, Korea
3Department of Neurology, Ewha Womans University Mokdong Hospital, Ewha Womans University College of Medicine, Seoul, Korea
4Department of Neurology, Soonchunhyang University Seoul Hospital, Seoul, Korea
5Department of Neurology, Jeonbuk National University Medical School and Hospital, Jeonju, Korea
6Department of Neurology, Chungnam National University Sejong Hospital, Chungnam National University College of Medicine, Sejong, Korea
7Department of Neurology, SMG-SNU Boramae Medical Center, Seoul National University College of Medicine, Seoul, Korea
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Corresponding author:
Eungseok Oh, Tel: +82-42-280-7934, Fax: +82-42-252-7654,
Email: massive@cnuh.co.kr
Jee-Young Lee, Tel: +82-2-870-2476, Fax: +82-2-831-2826,
Email: wieber04@snu.ac.kr
Received: 21 October 2024 • Revised: 22 November 2024 • Accepted: 20 December 2024
Abstract
Objective
The Huntington’s Disease Quality of Life Battery for Carers (HDQoL-C) is used to evaluate caregiver quality of life. This study aimed to develop and validate the Korean version of the HDQoL-C (K-HDQoL-C) to assess the burden on Korean caregivers of Huntington’s disease (HD) patients.
Methods
A total of 19 HD caregivers (7 females, mean age 55.4±14.6 years) participated in this study. The K-HDQoL-C, a translation of the English version, consisted of demographic information, caring aspects, life satisfaction, and feelings about life. It was administered twice, 2 weeks apart. Internal consistency was evaluated using Cronbach’s α, and test-retest reliability was assessed with intraclass correlation coefficients. The relationship with the Zarit Burden Interview-12 (ZBI-12) was analyzed.
Results
The internal consistencies of the K-HDQoL-C were 0.771 (part 2), 0.938 (part 3), and 0.891 (part 4). The test-retest reliability ranged from 0.908 to 0.936. Part 3 was negatively correlated with the ZBI-12, and part 4 was positively correlated with the ZBI-12 (r=-0.780, 0.923; p<0.001).
Conclusion
The K-HDQoL-C effectively evaluates the challenges faced by HD caregivers, particularly in terms of care aspects and life satisfaction.
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